Parkinson's Disease. - Page 3

Billcat · 23-10-2006, 21:08

Quote:

Originally Posted by garinda

I feel like I've been banging on about it too much of late, but I've had a few pm's from people who are indirectly affected by Parkinson's Disease, which I've answered to the best of my ability. For anyone else who may need information or advice, the Michael J. Fox site gives a lot of answers in a clear and easy to understand way.

How to Help

I'll shut up now.

Thanks for the link, very informative! While Michael Fox has the means to deal with PD better than many folks, I have to admire the effort he has made (and, similarly, the efforts Christoper Reeve made on spinal cord injuries). These two had the reasons and the financial means to pack it in and be taken care of, but they dedicated their lives to searching for cures that may someday help millions.

garinda · 24-10-2006, 22:52

Again, thanks to Steeljack for this link as to how Micael J Fox's campaign for stem cell research is being received.

BREITBART.COM - Michael J. Fox Plunges Into Election

garinda · 08-02-2007, 16:42

Someone sent me this.

I thought at first I'd better start skinning up, but sadly that doesn't seem work.

http://news.bbc.co.uk/1/hi/health/6338173.stm

LancYorkYankee · 08-02-2007, 18:35

I just tried to do a search regarding Parkinson's Disease. I had heard on the radio the other day about some very intriguing research being done. It was either George Washington University Hospital or Georgetown Univeristy Hospital. Both of these are right up the road in Washington, DC. I believe it was a form of medication that could curtail the PD's tremors.

I guess there is alot of "hope" in all this research but not much has reached the common man as of yet eh? Or have you actually been helped by some of recent research advances?

I trust things are at least stable for you my friend!

Brian

garinda · 08-02-2007, 19:13

Thanks Brian.

Happily research is turning up new things, almost weekly it seems. I'm hopeful that in my life time there will be something akin to a cure for Parkinson's Disease.

When I was first diagnosed three years ago, I was on an experimental new drug, but the side affects of constant vomiting, meant the benefits were far out weighed by the side effects.

At the moment, because eventually all drugs presently available stop working after so long, surgery seems the most effective option in the future. The thought of an eighteen hour operation, were rods are inserted into your brain whilst you ar eawake, frightens the hell out of me. Hopefully with the constant advancement in drug therapies, myself and lots of other people, may never have to experience that.

WillowTheWhisp · 08-02-2007, 20:49

The idea of having rods inserted into your brain while you're awake would probably terrify me too. I can cope with anything being done to any other part of my body because I can sort of distance myself from it into my head but if t involved my head I wouldn't be able to do that - I even hate having my eyes fiddled with never mind my brain. I hope they do progress with research before it comes to that for you.

SPUGGIE J · 08-02-2007, 23:49

Science s moving forward fast enough to find a cure in the next 5-10 years.

garinda · 09-02-2007, 00:02

Quote:

Originally Posted by WillowTheWhisp

The idea of having rods inserted into your brain while you're awake would probably terrify me too. I can cope with anything being done to any other part of my body because I can sort of distance myself from it into my head but if t involved my head I wouldn't be able to do that - I even hate having my eyes fiddled with never mind my brain. I hope they do progress with research before it comes to that for you.

Sounds horrible, but if it meant I could keep my independance I'd do it like a shot. Michael J. Fox had it done, but it's now affected the otherside of his body as well, so there is little they can do, although it did work for a while.

cashman · 09-02-2007, 01:05

thats a choice i sincerely hope you never have to make mate.

Billcat · 09-02-2007, 06:16

Let's hope that something better than that operation happens - and, for rindy's sake, soon!

Greetings from sunny San Pedro, California!

garinda · 26-11-2008, 17:11

Just on the off chance anyone here is affected by PD, or knows someone who is, I've started a Parkinson's Disease group on Facebook, mainly because there wasn't a U.K. based one.

I don't think a link to the page works, it just takes you to Facebook's sign in page, so if you put Parkinson's Disease in the search you'll easily see it.

Thanks.

andrewb · 26-11-2008, 17:17

Couldn't find the group easily through search (it only appears high if you're already a member). If you're logged into facebook it will work, its Parkinson's Disease. | Facebook

garinda · 26-11-2008, 17:25

Quote:

Originally Posted by andrewb

Couldn't find the group easily through search (it only appears high if you're already a member). If you're logged into facebook it will work, its Parkinson's Disease. | Facebook

Thanks Andrew.

MargaretR · 26-11-2008, 18:07

In my recent extensive websearching about vitamin deficiencies I came across this link that may be helpful-

National Parkinson Foundation - Parkinson, B6, B12, and Folate - What's the Connec
"Some health professionals are beginning to suspect that these three vitamins may be significant factors in Parkinson's disease."

grannyclaret · 27-11-2008, 13:47

I hope you get some positive help soon Rindy ,that operation sounds horrendous