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Old 10-09-2007, 19:39   #1
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Pending Holidays?

So, who besides Rindy are off over the next month or so? Rindy, I do hope your in the best of shape (all things considered) for your Greek Holiday! I for one am off to nowhere (and that suits me just fine!)

Brian
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Old 10-09-2007, 21:29   #2
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Re: Pending Holidays?

me im off to tunisia in oct .7th return.roll on
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Old 10-09-2007, 22:13   #3
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Re: Pending Holidays?

Thanks LYY.

Here I am moaning again, but I had a terrible weekend. Another weekend were my muscles were too rigid to dress myself, and I spent most of Saturday and Sunday blubbing and feeling sorry for myself, and because I was all of a dither, I was shaking like a one flippered seal. I was meant to, but couldn't, go to a barbie at my godfather's. They kindly brought me down some food, which was sweet, but also embarrassing, as I was still in a right old state. My mum stayed, and was her usual calming and brilliant self, until I was better.

However...I'm feeling much more perky tonight. My neurologist put me in touch with another of his patients with Parkinson's, who is the same age as me, and we've become great friends. He too has been down, and struggling to cope with the advancement of the disease, but he phoned me tonight, after returning from holiday with his wife and new son, a changed man. He saw the neurologist and they've doubled his drugs, and he says the change is amazing. He can walk better, his muscles aren't as rigid and don't freeze as much.

This has really cheered me up, as most of the time the drugs seem to be less and less effective for me. So tomorrow I'm off to see my G.P. to double my pills, to see if I can have the same miraculous change before my holiday.

So hopefully when I'm floating in the azure waters of the Ionian Sea, with the hot sun beating down on my body, I'll be able to control my shaking arm so I don't keep going round in circles.

Sorry for moaning, but in a way I've been dreading the holiday, but now feel much more positive, and am looking forward to getting away.
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Old 10-09-2007, 22:32   #4
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Re: Pending Holidays?

So sorry to hear you've had a bad weekend, thankfully you have got your lovely mum and friends to lean on. Hope you get sorted at the doctors tomorrow and then you can look forward to your holiday. You have every right to moan so if it makes you feel better to get it off your chest I you just do so.
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Old 11-09-2007, 05:13   #5
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Re: Pending Holidays?

good luck rindy at the docs and enjoy your latest adventure ( hols)
me im of to harlech sat for a week country cottage
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Old 11-09-2007, 08:44   #6
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Re: Pending Holidays?

not got anything planned for the rest of the year but i reckon i'll be going back to Belgium again next year
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Old 11-09-2007, 18:22   #7
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Re: Pending Holidays?

Thanks so much for your willingness to share your trials with us Rindy. I really hope we can all get to the point that sharing these sorts of stuff with our Accyweb mates is/can be/should be something more of us are willing to do. I KNOW it's not "the British way" but ****** that.

I think that suggestion of having a separate thread for thiis sort of thing is a GREAT idea. Mods, is this feesible?

Anyhoo, I do hope the med adjustment helps out. Also please remember bruva Rindy, anytime you want to hop into one of the PD trials at Johns Hopkins or other area UNiversities/hospitals, our door is always open for you to have a place to stay at!

Have a happy and safe Holiday all you lucky enough to be off!

Brian
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Old 11-09-2007, 23:42   #8
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Re: Pending Holidays?

My G.P. was fantastic today.

He's drawn me a graph to show how I should try and regulate the amount of dopamine I need to function better, and has told me to self medicate, to see what works best. Though he did tell me what dose not to exceed!

So hopefully my hols will be happy, and thanks very much for the good wishes x
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Old 12-09-2007, 07:30   #9
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Re: Pending Holidays?

That sounds like a positive result from the doc Rindy. Hope you have a great holiday.

I've only just come back from 5 weeks in a caravan so as you can imagine we haven't got much planned for the rest of the year apart from another trip to Morecambe to see a PJ Proby concert in October and a probable trip down south to visit family and an overnight trip to London to a show.
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Old 12-09-2007, 08:45   #10
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Re: Pending Holidays?

hope ya have a great jolly rind mate, paris n i are off on our usual to spain in oct, for a month so as to miss bloody bonfire night here.
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Old 12-09-2007, 21:12   #11
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Re: Pending Holidays?

Hey Big G, hope the new dosage works out for ya ! Here's to you having a great holiday ! ( you know where I am if you need to whinge, my shoulders are still as broad as they were that night you fell asleep on me ! )
Me and Kels and my Mum are off to Spain again at half term;a well earned rest and time for me to mentally prepare for the silly season !
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Old 12-09-2007, 21:18   #12
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Re: Pending Holidays?

Well Im Off To Blackpool For The Weekend Begining Of December With My Mates ........its Our Usual Treat For Christmas For Us .
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Old 13-09-2007, 16:01   #13
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Re: Pending Holidays?

Not going anywhere for a while but may try to get a week away at the beginning of December for Sparky's 40th. Have also booked flights to New Zealand next Feb for my 40th (but if anyone asks, I'm only 30 ).

Hope you have a fantastic hol Rindy..
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Old 13-09-2007, 21:04   #14
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Re: Pending Holidays?

Just booked for Amsterdam in a few weeks, looking forward to going window shopping
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Old 13-09-2007, 22:08   #15
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Re: Pending Holidays?

hope mel knows whats in some of the windows dave..........
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