So, who besides Rindy are off over the next month or so? Rindy, I do hope your in the best of shape (all things considered) for your Greek Holiday! I for one am off to nowhere (and that suits me just fine
!)
Brian
!)Brian
Pending Holidays?
- Thread starter LancYorkYankee
- Start date
Thanks LYY.
Here I am moaning again, but I had a terrible weekend. Another weekend were my muscles were too rigid to dress myself, and I spent most of Saturday and Sunday blubbing and feeling sorry for myself, and because I was all of a dither, I was shaking like a one flippered seal. I was meant to, but couldn't, go to a barbie at my godfather's. They kindly brought me down some food, which was sweet, but also embarrassing, as I was still in a right old state. My mum stayed, and was her usual calming and brilliant self, until I was better.
However...I'm feeling much more perky tonight. My neurologist put me in touch with another of his patients with Parkinson's, who is the same age as me, and we've become great friends. He too has been down, and struggling to cope with the advancement of the disease, but he phoned me tonight, after returning from holiday with his wife and new son, a changed man. He saw the neurologist and they've doubled his drugs, and he says the change is amazing. He can walk better, his muscles aren't as rigid and don't freeze as much.
This has really cheered me up, as most of the time the drugs seem to be less and less effective for me. So tomorrow I'm off to see my G.P. to double my pills, to see if I can have the same miraculous change before my holiday.
So hopefully when I'm floating in the azure waters of the Ionian Sea, with the hot sun beating down on my body, I'll be able to control my shaking arm so I don't keep going round in circles.
Sorry for moaning, but in a way I've been dreading the holiday, but now feel much more positive, and am looking forward to getting away.
Here I am moaning again, but I had a terrible weekend. Another weekend were my muscles were too rigid to dress myself, and I spent most of Saturday and Sunday blubbing and feeling sorry for myself, and because I was all of a dither, I was shaking like a one flippered seal. I was meant to, but couldn't, go to a barbie at my godfather's. They kindly brought me down some food, which was sweet, but also embarrassing, as I was still in a right old state. My mum stayed, and was her usual calming and brilliant self, until I was better.
However...I'm feeling much more perky tonight. My neurologist put me in touch with another of his patients with Parkinson's, who is the same age as me, and we've become great friends. He too has been down, and struggling to cope with the advancement of the disease, but he phoned me tonight, after returning from holiday with his wife and new son, a changed man. He saw the neurologist and they've doubled his drugs, and he says the change is amazing. He can walk better, his muscles aren't as rigid and don't freeze as much.
This has really cheered me up, as most of the time the drugs seem to be less and less effective for me. So tomorrow I'm off to see my G.P. to double my pills, to see if I can have the same miraculous change before my holiday.
So hopefully when I'm floating in the azure waters of the Ionian Sea, with the hot sun beating down on my body, I'll be able to control my shaking arm so I don't keep going round in circles.
Sorry for moaning, but in a way I've been dreading the holiday, but now feel much more positive, and am looking forward to getting away.
So sorry to hear you've had a bad weekend, thankfully you have got your lovely mum and friends to lean on. Hope you get sorted at the doctors tomorrow and then you can look forward to your holiday. You have every right to moan so if it makes you feel better to get it off your chest I you just do so.
Thanks so much for your willingness to share your trials with us Rindy. I really hope we can all get to the point that sharing these sorts of stuff with our Accyweb mates is/can be/should be something more of us are willing to do. I KNOW it's not "the British way" but bugger that.
I think that suggestion of having a separate thread for thiis sort of thing is a GREAT idea. Mods, is this feesible?
Anyhoo, I do hope the med adjustment helps out. Also please remember bruva Rindy, anytime you want to hop into one of the PD trials at Johns Hopkins or other area UNiversities/hospitals, our door is always open for you to have a place to stay at!
Have a happy and safe Holiday all you lucky enough to be off!
Brian
I think that suggestion of having a separate thread for thiis sort of thing is a GREAT idea. Mods, is this feesible?
Anyhoo, I do hope the med adjustment helps out. Also please remember bruva Rindy, anytime you want to hop into one of the PD trials at Johns Hopkins or other area UNiversities/hospitals, our door is always open for you to have a place to stay at!
Have a happy and safe Holiday all you lucky enough to be off!
Brian
My G.P. was fantastic today.
He's drawn me a graph to show how I should try and regulate the amount of dopamine I need to function better, and has told me to self medicate, to see what works best. Though he did tell me what dose not to exceed!
So hopefully my hols will be happy, and thanks very much for the good wishes x
He's drawn me a graph to show how I should try and regulate the amount of dopamine I need to function better, and has told me to self medicate, to see what works best. Though he did tell me what dose not to exceed!
So hopefully my hols will be happy, and thanks very much for the good wishes x
That sounds like a positive result from the doc Rindy. Hope you have a great holiday.
I've only just come back from 5 weeks in a caravan so as you can imagine we haven't got much planned for the rest of the year apart from another trip to Morecambe to see a PJ Proby concert in October and a probable trip down south to visit family and an overnight trip to London to a show.
I've only just come back from 5 weeks in a caravan so as you can imagine we haven't got much planned for the rest of the year apart from another trip to Morecambe to see a PJ Proby concert in October and a probable trip down south to visit family and an overnight trip to London to a show.
Hey Big G, hope the new dosage works out for ya ! Here's to you having a great holiday ! ( you know where I am if you need to whinge, my shoulders are still as broad as they were that night you fell asleep on me ! )
Me and Kels and my Mum are off to Spain again at half term;a well earned rest and time for me to mentally prepare for the silly season !
Me and Kels and my Mum are off to Spain again at half term;a well earned rest and time for me to mentally prepare for the silly season !
Have you been to Tunisia before Lancs??
Me and Ginger are booking our holiday on Tuesday!! We want to go end of October!! Don't know where yet though, a case of see where we end up lol.
But I have been looking at Tunisia and it looks really nice!
Will let you all know soon where we are going ( when I find out ) lol
I went about 20 years ago
Was okay and would go back but I guess it's changed a lot by now. Think somebody who has been more recently would be better commenting on what it's like now.
I went about 20 years ago
Well i aint too fussy where we go..... we are having a break away for our anniversary WITHOUT the children
so I don't have to worry about child safety/ activities etc ... Just somewhere nice and warm and away from Accy will do